A Long Journey Indeed

Hello friends, family, fellow writers, and the few random strangers who maybe clicked on my blog (I like to be positive and think that this is happening).

It's been awhile since I've blogged. I've been a little scarce in the blogging/Twitter world. My mom has been sick with COPD for several years. In January, her illness took a turn for the worst, and it's been terribly painful watching her go through that and not being able to help her. She passed away at the end of March, and I miss her terribly, though I'm glad she is no longer suffering. I couldn't have asked for a better mother. I'm honestly afraid of making it in this world without her.

My mom has helped me through many rough times, especially in the past few years. I wouldn't have made it through my most recent ordeal without her.

For five+ years I worked at a non-profit job as a community connector (this is a title that encompasses behavioral analysis, counseling, driving, CNA-type duties, care-taking, paper-work, janitorial work, etc. etc.). I took care of older adults with developmental and degenerative disabilities. I loved my job, mainly because of the wonderful people I had the pleasure of meeting and serving.

One day in June of 2014 I was assisting a client with gait issues walk. This is something I've done dozens of times over the years. Even with assistance, he was so unsteady that he fell frequently. He fell this day, but it wasn't like any other fall. He bumped my knee and took me down with him. I landed with my foot trapped underneath me. I immediately got up to assist him. It was a few minutes before I even realized I was hurt.

A visit to the urgent care revealed that I'd incurred a mild ankle sprain. The doctor advised rest, ice, compression and work restrictions, and said I'd likely be fully healed in two weeks. Except I wasn't. I was no better than I was immediately after the injury. I was referred to a specialist, where the injury was re-diagnosed as a high ankle sprain (less common, more severe). I continued working on restrictions and began going to physical therapy. After several weeks of PT, my injury was still no better. I was in pain all the time and miserable. It was very difficult to get through the work day, even with the restrictions. It was too much on my body. Finally, I had an MRI, which showed that surgery would be necessary to repair the damaged tendon and ligament.

Just after surgery, I was let go from my job because the company did not have a position that could accomodate my needs. It was past 90 days, so they were in their legal right to do this.

The surgery went well, and after a month of wearing a cast, I returned to physically therapy. Things were starting to look up. I was working hard in PT and gaining more function and the pain was lessening. But just when I thought I was ready to return to work, the pain began to worsen, and the swelling in my ankle returned. After being referred to a new podiatrist and having another MRI, it was revealed that while the ligament was well and good, the tendon was not. It had had a bad reaction to the sutures and was torn again. So once again I went under the knife, this time with a rather attractive surgeon holding said knife. I told him so while recovering from surgery and possibly a little looped on medications.

I went through the drill all over again: rest, non-weight bearing, crawling on the floor to carry hot coffee, cast, and finally physical therapy. And more physical therapy. And pain. And more pain. Continued pain and swelling. The function in my ankle returned, while some swelling and pain remained. The surgeon admitted that he did not know where to go from here, while the physical therapists tried various techniques, including weird electric things and tape. Yes tape. I guess their reasoning was that what two surgeries couldn't fix, surely some freaking tape could. As shocking as this might my seem, the tape didn't work. I was sent to a pain specialist, an occupational therapist, and a psychologist, because at this point, most doctors believed the pain was in my head. I had a new worker's comp doctor put in charge of my case, and she did a pretty terrible job of listening to me and assessing my needs.

At this point, I had to become a strong self-advocate, something that is terribly hard for me. I had to fight tooth and nail to get necessary treatments. It took forever, and I wanted to give up many, many times. The insurance company was ready to kick me to the curb and my doctor was no help. She did not listen to me and accused me of wanting money, despite my insistence that I only wanted treatment. At this point, the pain had spread from my ankle, to my foot, and up my leg. This is called  peripheral neuropathy, and it's a real asshole. It hurts like hell and is the weirdest kind of pain you can imagine. It has to do with angry nerves and can be caused by compression or surgery. Burning, pounding, crushing pain spread through my whole foot and up my leg into my knee. After a while, it moved to the other leg. Yes, it did. It sounds crazy, but it can happen. I was put through a number of tests to see if I had Complex Regional Pain Syndrome, a severe form of neuropathy that occurs in a limb. All my test results were negative, but every symptom I had fits perfectly into CRPS. Several physical therapists said they suspected I have CRPS. In much of the research I did, it was stated that none of the tests are fully accurate or conclusive. According to my research, CRPS is the only condition in which the patient experiences mirror pain--pain in the opposite, uninjured limb, like I had.

I was in pain all the time and severely depressed. My doctor didn't believe me and was closing my worker's comp case, meaning I would no longer receive disability benefits or any treatment. I was in no shape to go back to work. I was forced to hire an attorney. Just finding an attorney was yet another trial. Most attorneys won't take ankle cases, mainly because they don't pay much. Attorneys want severe car accidents and back injuries, and they told me this point blank. After talking to close to ten attorneys, I finally found one who was willing to take my case. But even so, it was still a battle. I had to see an independent doctor for an exam, and convince this one man that I needed more medical care. I couldn't just go to any doctor, I had to go to one my attorney and the worker's comp insurance company agreed on. It's a pretty messed up system. My attorney was not thrilled about the doctor I wound up with. Lucky for me, my attorney was wrong.

Dr. Regan listened to me and heard my frustration and agreed that I needed more care. He diagnosed me with CRPS and ordered more tests, and also thought I needed to see another ankle surgeon (something I'd been trying to tell my primary WC doctor, who wouldn't listen.) It was actually pretty satisfying taking this report back to my WC doctor. I wanted to wave it in her face and say, "I told you so!" I of course didn't, but I didn't have to. The report said it for me. She was wrong, and she knew it. Ever since then, she's listened to me and what I have to say.

Of course, the insurance company wasn't ready to give in. They filed for a hearing to dispute Dr. Regan's assessment, but it never got that far. The new surgeon used a more appropriate test than an MRI (dynamic ultrasound) and determined that my tendons and ligaments were a giant mess, like spaghetti noodles all clumped together. Likely there was an angry nerve trapped in that mess, causing all that awful nerve pain. So after jumping through more hoops, the insurance company was forced to back down and accept that I needed a third surgery, and reinstated my benefits. That was one year ago. My ankle is now strong. It still hurts, and I still have neuropathic pain in both legs, but it is much less than it was. The surgeon believes the nerves will likely calm down with time.

I've mostly made it through that ridiculous ordeal. I'm exhausted. It was a nightmare fighting so hard against the insurance company and doctors. The whole thing made me feel like shit mentally, on top of the physical pain. I felt like a worthless loser. I was unable to work, yet most doctors said I was fine. I was terrified about money running out and had no control over anything.

Luckily, I had a lot of support from friends and family. They played an important role in getting me through it, but they couldn't stop the depression, or that feeling of uselessness. Nothing stopped it completely, but there is one thing that helped it a great deal, and that's writing. Writing is my passion, my long-term career goal, my obsession, and my great love. I wrote before my injury and continued after. On good days, I pretended I wasn't disabled, but instead a full-time writer. My stories were my saviors. They gave me hope and purpose. I can say with perfect honesty that I don't know how I would've survived that time if I didn't have my writing. It gave me purpose. Without it, my depression might've taken over. I'm not exaggerating. It's just the truth.

I'm now back at work, and it feels really good to be out in the world again. It also feels good to be helping people again. My work is very different than what I did previously, but still rewarding. I work at a large non-profit helping homeless veterans find housing. I enjoy it and hope to continue it. The irony is that the book I've been working on for the past two years is called Pieces, a literary mystery about a combat veteran with PTSD trying to put his life back together.

I went back to work in December, just before my mom got sicker. She was thrilled to know I was doing better; she'd been very worried about me. In early March, she asked if I was better, and I said yes. This wasn't completely true, but true enough. This was about two weeks before she passed. I think she needed to know I would be okay.

Even though I have a job again, writing is still my goal. Pieces is almost ready to send to agents. My strength as a writer has grown over the years, but there is always room for improvement. The best way to improve is to network with other writers, attend workshops and meet agents and editors. Lucky for me, there are several events like this in Colorado. One is in June, called LitFest. The other is in September, the Rocky Mountain Fiction Writers Gold Conference. I plan to enter Pieces in the RMFW Gold Contest this May. The winners are announced at the conference. It would be wonderful if I could be there, whether I'm a finalist or not. There will be many agents and editors at this event, and I would love the opportunity to meet them and discuss my novel with them.

Unfortunately, conferences are expensive. Really expensive. But this is where my wonderful friends come in. One of my best friends set up a Go Fund Me for me, to help me fulfill my dreams, and some of my friends have already contributed. It's starting to seem possible that I might get to attend these conferences, and I couldn't be more grateful. The link to the campaign is below. I would appreciate any contributions anyone can give. If you can't, please share this post with your friends. Thank you so much! Love to all!

https://www.gofundme.com/help-this-amazing-writer